Global Day Against Pain

Global Day Against Pain

Celebrated every year on the third Monday in October, the Global Day against Pain is supported by the World Health Organization (WHO) which considers that the “treatment of pain and palliative care form an integral part of the right to enjoy good health.” According to IASP (International Association for the Study of Pain), one in five people suffer from moderate or strong chronic pain, and such pain renders one in three people incapable, or hardly capable of leading an independent life. Additionally, one in four people claim that their pain interferes with or destroys their relations with family and friends.

Science has made enormous progress concerning analgesic treatments. The medical culture has gradually accepted the essential nature of pain relief, by developing for example the use of morphine, and the adoption of pain evaluation and self-evaluation tables.

Regarding “moral” pain, the suffering inherent in the ordeals of life, these are also better considered, heard and accompanied. This is a vital factor in the prevention of suicide.

There has therefore never been such help in the fight against pain but there remains progress to be achieved regarding the generalization of access to pain relief and for the spreading of the palliative care culture.

Again this year, many hospitals and associations contributed to this special day through multiple initiatives. For instance the Cahors hospital centre which installed stands in the entrance hall to inform the public on the different types of pain and on the day to day work by the medical teams for pain relief. Or the Lille Catholic Institute Hospitals Group which devoted the entire 18th October to sessions and workshops on the theme of “Pain and Handicap”. Or again the Committee for the Fight against Pain (CLUD) which set up different stands at the Reims CHU hospital on 17th October and in particular gave a presentation of the different tools available for the evaluation of pain.

The Soulager mais pas tuer (Relieve but not kill) collective, consisting of medical workers and citizens, promoted by Philippe Pozzo di Borgo, was also mobilized on 18th October under the slogan “Never alone with pain” and the hashtag #toujoursenvie on social media.

Several hundred volunteers were deployed to meet the public, to inform them on the fight against pain, a challenge for humanity which concerns us all.

Established in 2014, the Soulager mais pas tuer collective militates against both intensive medication and euthanasia and medical termination and pleads for a proper palliative care culture. Philippe Pozzo di Borgo, its patron, who inspired the actor François Cluzet in the film The Untouchables, bore witness in an interview published on the Faire-face.fr web site in August on the neurological pain which he suffers and which few treatments are able to relieve, where he stated: “What motivates me, is the will to be fully present in my existence and to share it in respect for others”.

Suffering from an incurable neurodegenerative disease, the spokesperson of the “100% vivants” (100% alive) association, which belongs to the collective, was interviewed by La Croix. Caroline Brandicourt described that as far as she is concerned “The worst thing is to hear that a life is not worth living if you become incontinent and unable to move. That is my everyday life and it does not prevent me from being happy. I refuse to be pressurized to choose between suffering and dying. There is a third way. To live without suffering, since science makes it possible, and to recover what is essential: love for others.

As the debate is opening on the end of life, remember that euthanasia and medical termination are not inevitable and that the relief of pain and the deployment of palliative care everywhere in France must be the priority and concern to us all.

Abortion in the Constitution: Private Bill Rejected by the Senate

Abortion in the Constitution: Private Bill Rejected by the Senate

On Wednesday 19th October 2022, the Senators rejected, by 172 votes to 139, the private bill presented by the ecologist Senator Mélanie Vogel who wanted to register in the French constitution a “fundamental right for abortion and contraception”.

Like five previous private bills presented to both chambers, this private bill was put forward in reaction to the Dobbs vs Jackson decision by the United States Supreme Court, on 24th June 2022, which cancelled the 1973 Roe vs Wade ruling, thus deleting the recognition of a “right for abortion” at the federal level.

The debate

Signed by members of different groups within the Senate, the private bill was intended to reinforce the protection of the “right for abortion” by incorporating it in the French Constitution, in order to make it more difficult to rescind it at a future date. The private bill was supported by Eric Dupond-Moretti, the French Minister of Justice.

During the debate, Agnès Canayer, Senator from Les Républicains (LR) for Seine Maritime and reporter of the law commission, pointed out the useless and ineffective nature of the bill. According to her, “Registration of abortion would misrepresent the spirit of the Constitution and would open a Pandora’s box.” It is essential that the Constitution is not used as a “catalogue of rights” which would risk damaging the “protective role of the supreme authority”. The Senator recalled that the Constitution could only be modified for certain clearly identified reasons. Consequently, the right for abortion could not be justified, according to her, for any of these reasons. Another LR Senator, Muriel Jourda, warned about the risk of legislating “by reaction” and raised the question of the “narrow window of emotion”.

The difference of the situation prevailing in France and the United States was also raised during the debate, inasmuch as France is not a federal state. The decision by the US Supreme Court was aimed at the question of whether legislation on abortion should be governed by the federal state or the federated states, and it was decided that henceforth the federated states should legislate on abortion.

Other proposals at the French National Assembly

On the date when this private bill was being debated in the Senate, two other bills aimed at including abortion in the constitution are already planned in the French National Assembly. On 24th November, French members of parliament will examine the private bill presented by La France Insoumise (LFI) in the context of the parliamentary niche of that group. A few days later, a private bill presented by Aurore Bergé (Renaissance), supported by the presidential party, will be examined during the week of 28th November, and should be examined by the law commission on 9th November.

No less than 6 private bills have been registered to include abortion in the constitution. However, to date, there is no consensus on where this particular disposal should be included in the constitution (addition of an article 66-2 or inclusion in article 1 or 34), nor on its wording, which clearly illustrates the difficulties involved in its inclusion in the constitution.

During his statement, Eric Dupont-Moretti already announced that the Government would support all of the parliamentary initiatives to include the right for abortion in the constitution.

However, several jurists specialized in constitutional law expressed reservations on this constitutionalisation. Thus, in an interview in the La Croix periodical, professor Bertrand Mathieu stated in June that abortion is not a fundamental right, and that the recognition of a true “right for abortion” would lead to recognizing for women “an absolute right on the life of the foetus whereas until now the foetus always enjoyed constitutional protection, therefore threatening the “equilibrium” established by the 1975 law decriminalizing pregnancy termination. In an interview in Le Figaro published on 18th October, Jean-Eric Schoettl, ex-secretary general of the Constitutional Council wonders whether: “The authors of the constitutional private bill wish abortion to be totally free until the 9th month? One hopes not, even if their bill leads directly to it.”

This debate is occurring at the very moment when the latest figures on abortions published by DREES in September indicate not only that the number of abortions in France is stable year in year out, “around 225,000 per year” but also that the “overall rate of abortions is tending to increase and reached 15.5 abortions per 1000 women aged between 15 and 49 in 2021.

Can there be a right for pregnancy termination?

As far as Alliance VITA is concerned, the focus on the “right” for abortion, masks the true stakes at issue with abortions today. For Caroline Roux, deputy managing director, “by considering abortion merely as a right, we fail to consider the pressures – or the psychological violence – which lead to it in many cases” (La Croix, article, 28th June 2022). Financial reasons may also play a part, since a report by DREES in 2020 reported that women with modest means aborted more often. Finally, abortion is increasingly apparent as a marker of social inequality. It is quite astounding that in all the debates in the Senate, not a word was uttered on the subject of prevention and support for women in precarious situations.

Euthanasia: The European Court of Human Rights Records a Violation of Rights in a Belgian Case

Euthanasia: The European Court of Human Rights Records a Violation of Rights in a Belgian Case

On 4th October, the European Court of Human Rights passed judgement in a case opposing a Belgian citizen, Mr. Tom Mortier and the Kingdom of Belgium, concerning the euthanasia performed on his mother on 19th April 2012. Aged 64 and suffering from chronic depression diagnosed some forty years beforehand, she was euthanised without her son, the plaintiff, nor her daughter being informed. The court indicated that the present case has nothing to do with the existence or not of a right for euthanasia, but deals with the compatibility of the euthanasia as conducted on the mother of the plaintiff with regard to the European Convention of Human Rights.

The facts:

Whilst considering euthanasia, Mme De Troyer, the mother of the plaintiff, in September 2011 contacted Professor Wim Distelmans, following the refusal of her general practitioner to accompany her. Mme De Troyer had also been treated by a psychiatrist for many years. During the following months, the patient was interviewed on several occasions by the professor who also sent her to see two psychiatrists in succession. On 14th February, the patient submitted a formal application for euthanasia and on the same day, a psychiatrist issued a report concluding on the admissibility of her request. On 17th February, another practitioner examined the patient and gave a positive response to the application. The three practitioners, the number required by the procedure in the event of psychiatric disorders, were all members of LEIF (LevensEinde InformatieForum, Information Forum for the End of Life) which militates for euthanasia. During the various interviews, several practitioners advised the patient to make contact with her two children. She sent an email to her two children on 31st January to inform them of her request for euthanasia. This was performed by Professor Distelmans on 19th April, after interviewing Mme De Troyer several times during the previous weeks. The following day, the hospital informed her son, Tom Mortier, of his mother’s death.

On 20th June, the federal commission for the control and evaluation of euthanasia, co-presided by the professor, examined the euthanasia declaration record document received on 20th June and drawn up by the same professor. The commission concluded that the procedure had been conducted in accordance with the terms of the law.

After a few exchanges between the son and the professor, Mr. Mortier lodged an initial complaint in April 2014 against persons unknown, with the Crown Prosecutor. Meanwhile, he submitted in parallel, an initial enquiry with the European Court in October 2014, considered unacceptable as the internal appeal channels, in Belgium, had not all been exhausted. The complaint was dropped by the Belgian Prosecutor in May 2017 with no further action and Tom Mortier introduced a new appeal to the European Court in November 2017. In May 2019, the Belgian legal authorities opened a second penal inquiry, which was closed in December 2020, since the Chamber considered that there was no case to answer.

The judgement by the ECHR

The judgement by the Court concerned the compatibility of the euthanasia performed with respect to two articles of the convention. On the one hand, under article 2 on the “right to life”, and further under article 8 on the “right for respect of privacy and family life”. The recent advice of the CCNE (National Consultative Ethics Committee), also referred to these two articles in its short legal analysis. The Court recalled its previous jurisprudence. There is no right to die with the assistance of a third party or the State, but according to the majority of judges, the convention and in particular article 2 does not prohibit as such the practice of euthanasia in a legal context. It should be noted that a judge, dissident with the majority on this point, considers that euthanasia is already a violation of article 2. In his opinion, he stresses that euthanasia is not expressly mentioned as an exception to the right for life, which the signatory States could have included when drawing up the Convention if they had wanted to establish the right for euthanasia. Basically, the purpose of euthanasia is to terminate life, whereas the purpose of article 2 is “to preserve and protect“. A reading of article 2 introducing exceptions such as euthanasia “would leave no room for the stated positive obligation for member States to preserve human life, which appears among the most important declarations and developments of the Court jurisprudence. The protection afforded by article 2 must be general rather than fragmentary, and article 2 must be read coherently, in order to guarantee the effective protection of the right to life irrespective of the threat.” In other words, for that judge, article 2 takes precedence over article 8 “the right for respect of privacy”, as “once deprived of life, the dearest and most precious possession, an individual cannot exercise nor enjoy any other fundamental rights, and those rights are therefore emptied of their substance.”

The majority however voted 5 against 2 that there was no violation of article 2 “due to the legal context regarding the acts prior to euthanasia” nor any violation of the same article “with respect to the conditions under which the euthanasia was conducted on the plaintiff’s mother.” According to the Court, the decriminalisation of euthanasia may be compatible with article 2 if it is “controlled by the establishment of adequate and sufficient guarantees intended to avoid abuse and, thus ensure respect for the right to life.” The Court stipulated three conditions for compatibility:

  1. The existence in law and in practice of a legal framework regarding the acts prior to euthanasia
  2. Compliance with the legal framework established in each case of euthanasia
  3. The existence of a verification, subsequently in the Belgian case, with an adequate, detailed and independent investigation.

In consequence, and unanimously, the Court stated “that article 2 of the Convention had been violated due to the failings of the verifications conducted subsequent to the euthanasia performed.” It noted that the first criminal investigation lasted more than 3 years “whereas no required investigation appears to have been undertaken by the Crown Prosecutor. The Government does not indeed dispute the lack of effectiveness of this first investigation.” Additionally “considering the crucial role played by the Commission in the subsequent verification of euthanasia, the Court considers that the verification system established for the purpose did not ensure its independence, irrespective of any actual influence which may have been applied by professor D. on the decision taken by the Commission on the subject.”

Finally, the Court rejected the claim by Tom Mortier concerning the violation of article 8, considering that his right to privacy and family life had not been violated by his mother’s euthanasia. In its judgement, the Court considered that the doctors took all reasonable measures, with respect to the law and their duty of confidentiality, by encouraging her to contact her children.

Conflicting interests and autonomy: the dissidence of a judge.

In her opinion “partly in agreement and partly dissident” judge Maria Elosegui, closely examined two particular aspects of the case: the potential conflict of interests between the doctors and the patient and the question of the patient’s autonomy. The judge began by recalling, quoting a study, that the doctor/patient relationship is asymmetrical because patients “ask for help in a situation of necessity, whilst trusting the moral integrity and competence of the medical staff.” This condition should lead legislators to reinforce the prevention of conflicting interests with the doctors. The judge then expressed her opinion, based on a detailed analysis of the case in question, considering that “not only were there failings in the verifications subsequent to euthanasia, but also that the rules governing the working of the commission do not provide the guarantees and safeguards required by article 2 of the Convention, and that this operating mode cannot be considered as being within the margin of appreciation of the States.” Concerning the inadequacy of the Belgian arrangements, several facts were quoted in her opinion. The 2012 report by the Control Commission established that of its 4 French-speaking member doctors, 3 belonged to the ADMD management board (association for the right to die with dignity), and that of the 4 Dutch-speaking doctors, 2 belonged to the LEIF management board. In the case considered, according to the Government, the commission voted unanimously to approve this euthanasia, whereas the doctor who performed the euthanasia took part in the vote. Even more disturbing, the medical expert appointed by the examining magistrate noted that “there was not a single document in the file regarding the declaration of euthanasia submitted to the commission, nor concerning its verification “, and nevertheless “the prosecutor had considered that the euthanasia of the plaintiff’s mother complied with the conditions specified by law.” The independence of the three doctors, members of LEIF, an association militating for euthanasia and which is presided over by Professor Distelmans, is also questionable.

Finally, the judge highlighted the importance of not giving precedence to autonomy over the other bioethical principles of benevolence, non-malevolence and justice. Moreover, autonomy covers several meanings and the relational aspect cannot be ignored. In the case of a person affected by mental disease, there is a real risk of abuse associated with a falsified assessment of autonomy. The judge noted that “In the past, families took decisions without taking into account the wishes of patients or without asking them. Nowadays, on the contrary, we are seeing other types of risks of failure to respect the dignity and rights of patients, the first being to again leave a vulnerable and defenceless person in the hands of a doctor, isolated from family and friends.”

As a result, the shortfalls of the Belgian framework and its verification, highlighted in this particular case, undermine the judgement by the Court that decriminalisation of euthanasia is possible subject to a controlled legal framework and practice. Additionally, it is possible that this case merely represents the tip of the iceberg. Indeed, as noted by the plaintiff, “of the twelve thousand cases examined by the (verification) commission only one has been referred to the Crown Prosecutor.”

The Contentious Case of Euthanasia in Canada: The Concerns of Human Rights Experts and the Handicapped

The Contentious Case of Euthanasia in Canada: The Concerns of Human Rights Experts and the Handicapped

In early October 2022, the CBC news daily reported the sad story of a young woman in Manitoba, suffering from ALS who resolved to apply for euthanasia due to the unavailability of home care. She was able to bear her condition even if it was gradually worsening and would have liked to live longer. Nancy Hansen, a lecturer at Manitoba University, specialised in studying handicap, has concerns about the manner in which euthanasia is offered to people confronted with handicap.

Already last August, the APNewsn (AP) press agency relayed the concerns of experts who are alarmed at the consequences of the Canadian law on euthanasia concerning the rights of the handicapped. In a lengthy study, several cases were reported of handicapped people being led to euthanasia. Alan Nichols a 61-year-old man with a previous history of depression was admitted into hospital in 2019 due to suicidal tendencies. A month later he was euthanised. The reason given was his “Loss of hearing”. His family registered a complaint against this “execution”. The hospital claimed that Alan Nichols had made a valid request for euthanasia and that, in accordance with the private will of the patient, he was under no obligation to inform his next of kin or to include them in the discussions on his treatment.

The witness account by Roger Foley is equally startling. This 45-year-old man, admitted into hospital in London, Ontario, was suffering from a degenerative disease. Alarmed by the fact that members of staff were mentioning the possibility of euthanasia, he started to secretly record some of their conversations. In a recording obtained by the AP, the Director of Ethics at the hospital informed Foley that his hospital stay would cost “1500 dollars per day”. When questioned about the plan for his long-term treatment, the “Ethics” Director merely replied that his personal mission was limited to simply offering him “the possibility of being able to access assisted death.” However Mr. Foley declared that he had never mentioned euthanasia previously. The hospital then sidestepped, claiming the absence of any prohibition for its personnel to raise the question. In 2020, the patient then applied to the representatives of the Human Rights Justice Commission from his hospital bed via Zoom. He pleaded with them not to extend the legislation on medical termination, and denounced the fact that “it is easier to access medical termination than safe and appropriate life support measures.”

The review also mentions Canadians who request euthanasia for financial reasons. Before being euthanised in August 2019 at 41 years of age, Sean Tagert had difficulty obtaining the medical care he needed 24 hours per day. Despite his suffering from ALS, the government would only cover 16 hours of care per day. He had to fund the remaining 8 hours himself. In the end, he was unable to raise the funds required to finance the specialist medical equipment he needed.

Heidi Janz, the Deputy Assistant professor of ethics for the handicapped at the University of Alberta, stated that ”a handicapped person in Canada has to overcome so many obstacles in order to obtain support, that it is often enough to tip the balance” and lead to euthanasia. A professor at the University of British-Columbia, Mr Stainton, stresses that no province or territory provides benefits for handicap services greater than the poverty threshold. In certain regions, it reaches 850 $ CA (662 $) per month – less than half the amount which the government provided to people unable to work during the COVID-19 pandemic.

Contrary to the few nations which have legalised euthanasia such as Belgium and Holland, Canada has not established any verification commission for examining contentious cases either beforehand or subsequently. Additionally, Canadian patients are not required to have exhausted all other treatments. The survey also underlines that the Canadian Association of Health Professionals who conduct euthanasia requires doctors and paramedics to inform patients that they are eligible for euthanasia even if they have not asked for it.

Whereas Canada is currently examining the possibility of extending access to euthanasia in 2023 to those suffering from mental disorders, those defending the handicapped and Human Rights are claiming that the system now merits a more detailed study. Euthanasia “cannot be the default practice due to the shortfall of Canada with respect to its obligations towards human rights“, according to Marie-Claude Landry, President of the Human Rights Commission. She shares the “Deep concern expressed last year by three Human Rights experts at the UNO, in a common statement concerning the Canadian law: “Handicap should never be the reason for ending a life” These experts additionally noted: “The proportion of handicapped people afflicted with poverty is significantly higher” than for the rest of the population, and “Inadequate social protection could further encourage these people to wish to end their life, in despair.”

They underlined that the Canadian law on euthanasia had a “discriminatory impact” on the handicapped and was incompatible with the obligations of Canada to comply with the international standards of Human Rights.

Abortion in Spain: Private Clinics Sentenced by the Supreme Court for Misleading Advertising

Abortion in Spain: Private Clinics Sentenced by the Supreme Court for Misleading Advertising

Last September, the Spanish Supreme Court confirmed the sentence by the Oviedo Court, condemning ACAI for misleading advertising. ACAI (Asociacion de Clinicas Acreditadas para la Interrupcion Voluntaria del Embarazo) is a group of some thirty private clinics, approved for conducting abortions.

A misleading general assertion

Prior to this sentencing, on its web site under the heading of frequently asked questions, against the question “What risks am I exposed to if I undergo an abortion?” the answer given was “Pregnancy termination is an operation which leaves no after-effects, therefore when you become pregnant, it will be the same as if you had not previously had an abortion. Neither is there any risk of becoming sterile after undergoing one or more abortions. Abortion is the most frequent surgical operation conducted in Spain, it leaves no after-effects and the incidence of complications is extremely low.”  A group of lawyers sued ACAI over the claim of no after-effects, as a general claim. The Oviedo Court, in its sentencing, subsequently confirmed by the Supreme Court, considered the claim to be misleading advertising following several witness accounts reported to the court on the subject of possible after-effects. A gynaecologist, a surgeon and a therapist were auditioned and made statements concerning the existence of cases where after-effects, in particular psychological after-effects, had been experienced.

Following this sentencing, the ACAI web site has modified the answer to the question as follows: “Abortion is one of the most frequent instrumental operations conducted in Spain, the incidence of complications is low when it is performed by professionals trained to perform the operation and providing adequate psychological support has been provided. The professionals at the centres will inform you throughout the process of the possible complications and/or side-effects of the operation, and this will be recorded by the signing of an informed consent form.

Abortion in Spain: A different situation from that in France

Abortion in Spain is governed by a law dating from 2010 which authorises abortions up to the fourteenth week of pregnancy, and the twenty-second week “in the event of a serious risk for the life or health of the pregnant woman or a risk of serious anomalies for the foetus”. Last May, the Spanish government put forward a draft bill to do away with the 3 day cooling-off period and the requirement for parental consent for minors, a clause which had been reintroduced by a law dating from 2015. The most recent statistics published by the authorities indicate a total of 88,269 abortions in Spain during 2021, i.e. a rate of 10.3 per 1000 women between the age of 15 and 44. This rate is 15.5 in France according to the latest available statistics. Furthermore, 15% of abortions are performed in state-run hospitals, the remainder being performed in private clinics. The statistics list some 200 in Spain.

This judgement aimed at certain clinics underlines the importance of not dissimulating the realities experienced by women for the benefit of an ideological and commercial approach.

Trivialising the practise and consequences of abortion for women cannot be an accepted aim for public health.